Tuesday, January 3, 2023 Daytime update

• 6:30 am- Maureen is asleep. She is laying on her left side.

• 6:50 am- Maureen just had another mild episode. She woke up slowly, but then the arms and hands started twitching. Her eyes were not staring , she was blinking and responsive. The pulse stayed in the 85-90 range for a couple minutes, then quickly picked at 122 for just a few seconds and began coming down. . Oxygen was in the 93-96 range. Everything lasted about 5-6 minutes.

• 7:30 am- Maureen is calm and relaxed. Pulse is in th 70-75 range, O2 is between 93-96. . She is receptive to some water with the swab.

• 8:00 am- Maureen is closing her eyes from time to time. She is calm and relaxed.

• 8:30 am- Maureen is awake now. We started our day. The diaper was medium wet and had a large formed bowel movement in it. Dalia and I cleaned and changed. There was a little discoloration on her sacrum area, more brownish than red. We applied Cavilon Barrier film. Applied Cavilon lotion. Washed Maureen's upper body, dressed and headed to the kitchen.

• 8:48- Administered Levothyroxine with apple sauce.

• 8:50 am- Breakfast- oatmeal, banana, 8 oz of prune juice, cup of lemon water . Maureen coughed 5 times, we caught some phlegm with the suction pump. No red face coughs.

• 9:25 am - Administered Lisinopril and Loratadin.

• 9:26 am - Morning oral care.

• 9:30 am- We reclined Maureen's chair down for her comfort.

• 9:35 am- Facial routine.

• 10:00 am- Maureen is taking a nap in the chair.

• 10:30 am- Maureen is still sound asleep in the chair.

• 10:50 am- Maureen is awake. She is enjoying 1/2 a cup of smoothie. There were 4 coughs, 2 red face .We were able to catch some phlegm with the suction.

• 11:10 am- We headed Maureen to the bedroom for her first rest break. The diaper was medium wet and she just had a small soft bowel movement. Dalia and I cleaned and changed Maureen. Positioned her on the right side at 11: 25 am.

• 12:25 pm- Rest period # 1 ends. Maureen's diaper was dry. We dressed and headed to the kitchen.

• 12:35 pm- Lunch time- butternut squash soup, eggs salad, peeled fresh tomatoe, 12 oz of coconut water, cup of lemon water. Maureen coughed twice. Gave Maureen 20 ml of Robafen after lunch.

• 1:10 pm- Oral care.

• 1:15 pm- We reclined Maureen's chair.

• 1:20 pm- Maureen sneezed a lot- 6-7 times. Her eyes were watering. There were 3 coughs.

• 1:45 pm- Nebulizer treatment with Albuterol.

• 2:05 pm- We transferred Maureen to the bedroom for a change and her second rest break. The diaper was heavy wet. Dalia and I cleaned and changed Maureen. She will lie on her left side for an hour starting at 2:20 pm.

• 3:20 pm- Rest break # 2 is over. Maureen's diaper was dry. We dressed and headed to the front room.

• 3:30 pm- Fruit snack. One cough.

• Maureen had definitely more energy today. Congestion was minimal. Coughing was less then what we saw before. She smiled a lot during the day.