April 20 daytime update

• 6:30AM - Maureen is sleeping

• 7:30AM - Maureen remains sleeping. She is not stirring at all. Maya checked diaper. It appears to be dry.

• 8:18AM - Maureen is just starting to stir. She is gently moving her arms.

• 9:07AM - Maureen did not wake up. She remains asleep.

• 9:20AM - Maureen just woke up. She is a bit red in the face. Her temperature is 99.5.

• 9:35AM - We checked temp again. It is now normal—97.3.

• 9:40AM - Day has officially began. Diaper was wet. Maya cleaned Maureen and put on a new pull up. We used the Hoyer Lift and the general purpose sling for the transfer to the day chair. The lift has been a huge net positive for this transfer—for Maureen and we caregivers.

• 9:47AM - Breakfast is underway.

• 10:00AM - Morning meds administered

• Per Tom and Carolyn, we will not administer the 5mg of Escitalopram (Lexapro) today.

• Maureen's disposition is good. Her posture in the day chair is erect—with not wedge pillow assistance.

• Nasal congestion is significant this morning. We will administer a dose of Flonase.

• Maureen will once again drink 1/2 cup of prune juice.

• Coughing was minimal this morning during breakfast—2 to 3 times at most.

• 10:45AM - Maureen's overall disposition has deteriorated. Her forehead is a bit furrowed. Engagement snd responsiveness have decreased.

• Maya observed that Maureen's arms and legs are very loose today—no stiffness at all.

• 11:05AM - Fruit smoothie snack

• 11:38AM - Maureen has begun to slump forward in the day chair.

• 1:20PM - We took Maureen to the bathroom. Her pull up was wet. She did not urinate but did have a very small bowel movement in the toilet. Maya cleaned her thoroughly and put on a fresh pull up.

• 1:40 - Lunch

• 3:20PM - We took Maureen to the bathroom. Her pull up was wet. She had a very small bowel movement in the toilet. Maya thoroughly changed and cleaned her.