Tuesday, February 21 Daytime update

• 6:30 am- Maureen is asleep. Tom administered 0.1 ml of Lorazepam at 6:20 am.

• 7:00 am- Maureen is slowly waking up.

• Maureen is in and out of sleep. Pulse is 64, O2- 95.

• 7:30 am- Maureen is still in and out of sleep.

• 8:00 am - Maureen is waking up.

• 8:30 am- Maureen is still sleepy, closing her eyes again. She has been very restless this morning. She is sleepy, but closes her eyes for a few minutes and every time she opens them she is moving her legs up and down a lot, moving her head and whole body.

• 9:00 am- We started our day. Maureen's diaper was medium wet. Dalia and I cleaned and changed her. Applied 3 M Cavilon products. We next washed Maureen's upper body. There is still a slight redness on her right inner elbow. We cleaned with water and soap, After it dried we applied a thin layer of nystatin. Finished dressing and headed to the kitchen.

• 9:20 am- Breakfast- pancake with a peach jelly and banana, 8 oz of prune juice. We started with administering Levothyroxine with apple sauce. Maureen coughed twice during breakfast, sneezed once. We had to recline Maureen's chair during breakfast, because she was leaning forward and her head was down.

• 9:45 am- Administered Lisinopril and 5 ml of Zyrtec.

• 9:50 am- Morning oral care.

• Maureen has zero energy this morning. Her eyes are half way open. She doesn't even have the energy to eat. A few times she even stopped chewing with food in her mouth. She looks tired and sleepy.

• 10:15 am- Maureen is sleeping in the chair.

• 11:00 am- Maureen is still sound asleep in the chair.

• 11:10 am- Maureen woke up . She started twitching a little, her jaw was clenched. Signs we usually see when she has an episode. But her eyes were normal, pulse went up to 80 for a second then quickly came down in the normal range. It lasted about 10 minutes.

• 11:30 am- We transferred Maureen to the bedroom. Her diaper was dry. Dalia and I positioned her on the right side at 11:40 am.

• Maureen is very restless again while laying down. She is moving her legs, arm and head.

• 12:40 pm- Rest break # 1 ends. Maureen's diaper was medium wet. Dalia and I cleaned and changed her. Dressed and headed to the kitchen.

• 12:55 pm- Lunch- cabbage soup, tuna salad, steamed broccoli, bottle of coconut water.We reclined Maureen's chair prior to feeding and position was great. Two coughs.

• Maureen ate her lunch with more energy . Her eyes are open, she doesn't look tired.

• 1:25 pm- Oral care.

• 2:00 pm- We transferred Maureen to the bedroom. Her diaper was light wet. Dalia and I cleaned and changed. Maureen will lie on her left side for an hour starting at 2:15 pm.

• 3:15 pm- Rest break #2 ends. Maureen's diaper was dry. We dressed and headed to the front room.

• 3:30 pm- Fruit snack. Two coughs.