March 9 daytime update

• Day began @ 7:55AM. Maureen is in good form. Her diaper was wet. Maya changed and cleaned her. She has been awake since 6:30AM.

• She coughed 2-3 times during breakfast. Her posture in the day chair is good.

• Due to the continuing constipation, we gave her a dose of MiraLAX and a glass of prune juice.

• We administered 2.5ml of Lacosamide (Vimpat).

• 8:45AM - Maureen is more awake, engaged and energized so far this morning.

• 10:00AM - Maya noticed the Lacosamide (Vimpat) is beginning to reduce Maureen’s energy and level of engagement. The negative effects are far less than yesterday.

• 10:30AM - We took Maureen to the bathroom. She had a very large bowel movement. It was solid. Her pull up was dry. Maureen also urinated. It was cloudy.

• 12:40PM - Maureen asked to go to the bathroom. Her pull up was wet. She did not urinate in the toilet.

• 3:05PM - Tom and Maya took Maureen to the bathroom. Her pull up was dry. She urinated a good amount in the toilet. It was cloudy.