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Friday, May 26 Daytime update

  • 6:30 am- Maureen is sleeping. She is laying on her left side.

  • 7:00 am- Maureen is asleep.

  • 7:30 am- Maureen is still sound asleep.

  • 8:00 am- Maureen opens her eyes at times but goes back to sleep.

  • 8:30 am- Maureen is waking up.

  • 8:45 am- Maureen is awake. We raised the bed and administered Levothyroxine with apple sauce.

  • 9:00 am- We started the day. Maureen's diaper was medium wet. Dalia and I performed a clean and change routine. Applied Cavilon Barrier film and Cavilon cream. We washed Maureen's upper body. Dressed and transferred her to the recliner.

  • 9:15 am- Breakfast- Smoothie, 6 oz of prune juice with 1/4 cup of Miralax, cup of lemon water. Maureen coughed once.

  • Daily Miralax dosage- 1/4 cup.

  • 9:40 am- Administered Loratadin and Lisinopril .

  • 9:45 am- Morning oral care.

  • 9:50 am- Facial routine.

  • 10 30 am- Maureen is sleeping in the recliner.

  • 11:15 am- We transferred Maureen to bed. Diaper was medium wet. Dalia and I cleaned and changed her. She will lie on her left side for an hour starting at 11:30 am.

  • 12:30 pm- First rest break is over. Maureen's diaper was dry. We dressed and headed to the kitchen.

  • 12:40 pm- Lunch- lentils soup, tuna salad, fresh tomatoe, cup of lemon water. Chobani yogurt for dessert. Maureen coughed once. She finished her first cup of water during lunch.

  • 1:15 pm- Oral care. We reclined Maureen's chair after.

  • 2:15 pm- We transferred Maureen to bed. Diaper was heavy wet. Dalia and I cleaned and changed her. Positioned Maureen on her left side at 2:30 pm.

  • 3:30 pm- Rest break ends. Maureen's diaper was medium wet. Dalia and I cleaned and changed her. Dressed and transferred Maureen to the recliner.

  • 3:45 pm- Fresh fruit snack- watermelon and kiwi. No coughs.

  • Maureen had very low energy and was sleepy the whole morning. During and after lunch she was very energetic and talkative. She said "Hey, Maureen ", "I did it ", "it's ok " . It was great !


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