Friday, April 7 Daytime update

• 6:30 am- Maureen is sleeping.

• 6:45 am- Maureen opened her eyes, there was a very slight twitching, pulse was 83, O2-93. The pulse didn't go up, started going back to her normal 60-65 range in a couple of minutes. She looked calm .

• 7:00 am- Maureen is going back to sleep.

• 7:30 am- Maureen is sleeping.

• 8:00 am- Maureen is still asleep.

• 8:30 am- Maureen is sound asleep.

• 9:00 am- Maureen is still sleeping.

• 9:10 am- Maureen started to wake up. She looks calm.

• 9:20 am- Maureen looks awake enough and we started the day. Her diaper was dry. Dalia and I washed Maureen's upper body. We noticed two new red spots on her right forearm. Hydrocortisone was applied. We dressed Maureen and headed to the kitchen.

• 9:30 - Administered Levothyroxine with apple sauce.

• 9:35 - Breakfast- oatmeal with a little piece of banana and half a pear, 8 oz of prune juice with 3/4 cup of Miralax, cup of lemon water. Maureen coughed four times during breakfast.

• Daily Miralax dosage- 3/4 cup.

• 10:05 am- Administered Loratadin and Lisinopril with apple sauce.

• 10:10 am- Morning oral care.

• 10:15 am- Facial routine.

• Maureen's nose has been running this morning. We sprayed Saline mist in her nostrils.

• 10:30 am- Maureen is snoozing in the chair. She looks tired, doesn't have much energy.

• 11:00 am- Half a smoothie with pear and berries. No coughs.

• 11:30 am- Maureen is sleeping again in the chair.

• 12:00 pm- Maureen is awake.

• 12:15 pm- Lunch- Red beets soup, shrimp salad, fresh tomatoe, cup of water with a little coconut water for taste. Maureen finished her water during lunch. She coughed four times, sneezed once. Her head was leaning forward and down even with the chair's reclined position during lunch.

• 12:45 pm- Oral care.

• 1:00 pm- We transferred Maureen to the bedroom for a rest break and a change. Her diaper was medium wet. Dalia and I cleaned and changed. Applied Cavilon Barrier film and Cavilon cream. Just before taping the new diaper in place, we massaged Maureen's lower abdomen/colon area for a little to stimulate a bowel movement. We stumulated the bladder obviously, so we cleaned and changed another medium wet diaper. Positioned Maureen on her right side at 1:20 pm.

• 2:50 pm- The only rest break today ends. Maureen's diaper was medium wet. Dalia and I cleaned and changed her. Dressed and headed to the living room.

• 3:10 pm- Fresh fruit snack- pear and watermelon. No coughs.