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April 13 daytime update

bjtm65


  • 6:30AM - Maureen is asleep.

  • 6:50AM - Maureen is now awake. Maya checked the diaper. It is wet. Maya will give Maureen small sips of water periodically via the swab as long as she remains fully awake.

  • Maureen began her day @ 8:05AM. She is in good form—engaged and responsive. Both Maya and I noted right away that Maureen was very congested this morning. Every Wednesday is bed bath day. Maya began by removing the BandAid from Maureen's right big toenail. She cleaned the nail with a damp cloth and Aloe Vesta Cleansing Foam. Lastly, Maya and I put on a new BandAid to protect the nail from rubbing on Maureen's sock. Her diaper is light wet. We removed it and the proceeded to give Maureen a complete bed bath using Aloe Vesta Cleansing Foam and warmed bath cloths (purple packet). After applying the foam, Maya wipes it dry with one of the soft colored washcloths. We then headed to the kitchen for breakfast.

  • The red area on Maureen's backside remains. It does not look any better or worse than yesterday—dark red line on upper buttock has faded a bit. See attached images.






  • Breakfast service began @ 8:55AM. Posture in the geri chair is very good. Maureen is tilting a bit forward and to the left. We used both green wedge pillows and Magic Mike to straighten her position in the chair.

  • Click/tap here to view all the steps of our standard morning routine.

  • Daily MiraLAX dosage: None

  • 9:56AM - Morning oral care routine

  • 10:02AM - We tilted the geri chair back one notch for Maureen's comfort and to relieve pressure/stress from her lower back.

  • 10:05AM - Morning facial treatment including hand and arms.

  • General observations @ 10:13AM> The morning has started well. Maureen has maintained her energy for the most part. It is starting to dissipate as of the writing of this update. Engagement, communication and responsiveness are all good. Maureen continues to be congested. She started uttering the low moan/groan about 30 minutes ago.

  • 10:30AM - Do you really have to ask? You know what time it is. Organic fruit smoothie time.

  • 11:02AM - We transported Maureen to the bedroom to prepare for Rest Break #1. Diaper was medium wet. Diaper was medium wet. Maureen had a very small soft bowel movement. Maya and I performed a clean & change. We then set Maureen up on her right side.

  • 11:15AM - Rest Break #1 begins

  • 12:20PM - Rest Break #1 ends. Diaper was light wet. Maya cleaned up a small amount of fecal discharge. We examined the red area on Maureen's posterior. Our conclusion: it is less red and therefore improving. See the attached images. Just as we were wrapping up the clean & change process, Maureen had a medium formed bowel movement. We repeated the clean & change process. After we got Maureen fully dressed and set the sling in place, Maya and I washed Maureen's hair.


  • 12:55PM - Maya styled/brushed Maureen's hair using the new process we began using last Saturday. Click here to view an overview of this process.

  • 1:05PM - Lunch | Maya prepared 1/2 a tuna salad sandwich on toasted whole wheat bread, 1/2 a bowl of chicken noodle soup and a serving of peas. Maureen will drink one 12-ounce bottle of Harmless Harvest Organic Coconut Water. For dessert, Maureen enjoyed a small serving of tapioca pudding.

  • THAT'S NEW> Maureen was tilting more forward and harder to the left than we have ever seen. We tried every possible configuration of pillows in combination with tilting the geri chair back one and two notches. We were not able to get her to sit even somewhat upright. It was as if she had no control over her core.

  • 2:33PM - We took Maureen to the bedroom for what will be a truncated Rest Break #2. The diaper was medium wet. Maya and I performed a clean & change and then set Maureen on her right side.

  • 2:47PM - Rest Break #2 begins.

  • 3:12PM - Rest Break #2 concludes. Diaper is light wet. Maya and I performed a clean & change. We then transported Maureen to the front room and placed her in the lift recliner.

  • 3:33PM - Afternoon fruit snack

Daily Cough Count

​Breakfast

Smoothie

Lunch

​Fruit Snack

​Other

Red Face

3

1

5

0

2

6



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